Michelle and Jeffrey Carlberg

After suffering back pain, weight loss and skin and stomach problems with no answers, I was finally diagnosed with multiple myeloma in August of 2016. I did the multiple myeloma standard induction therapy of RVD (Revlimid, Velcade, and dexamethosone) for four months and in February of 2017 I underwent an autologous stem cell transplant. Unfortunately, before 100 days, my multiple myeloma was on the rise and doctors concluded that my disease was more aggressive than they previously thought. In August of 2017, I began Kyprolis, Revlimid, and dexamethosone (KRD) and in December 2017 I finally reached the coveted remission status. It wasn't until January of 2019, after another bone marrow biopsy, that I received the great news that I am minimal residual disease-negative! 

No one ever wants to hear the word “cancer.” While my world instantaneously shattered, it also wasn’t a death sentence. Although multiple myeloma has no cure, it is manageable through medication that has come out in the last 10 years. Through research, treatment for the disease continues to evolve. And for that I am forever grateful. I plan to throw my full support behind research and awareness to live my fullest life possible.

I am honored and grateful to be chosen as part of the Moving Mountains for Multiple Myeloma team to hike in Patagonia this November and excited to raise awareness and funds for the diseaes. I am especially excited to share this experience with my husband, who has been an awesome caregiver and advocate for me. Hiking has always been one of the passions we have shared together. We traveled to Patagonia in 2006 as part of an around the world trip and it holds a special place in our hearts. We are thrilled to return together as part of an awesome team of patients, caregivers, myeloma doctors, nurses and researchers advocating and accelerating treatments for this incurable disease. 

Life with two young, active boys is always an adventure. Having multiple myeloma added a new, unexpected road in our path. While doctors and infusion appointments have become a new normal, it adds another layer of chaos to our household. I try to embrace our mania to the fullest extent. Please follow our journey on my blog: www.myelomamania.com

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Multiple Myeloma Research Foundation

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